Monday, April 28, 2014

Dentist Appointments

All three kiddos had their teeth cleaned today! No cavities for any of them and Kyle even sat in the chair all by himself like a big boy!

The Month of April

I feel like I haven't taken many pictures in the past month... or posted anything besides medical updates about Colby... So he are some pictures from the past month...

15 Months Old

Our little man is fifteen months old!

Colby has four teeth! For a few short days he liked to use his teeth to hold on when pulling himself up... like to hold on to mommy's leg.. or mommy's arm... it was a bit painful, but luckily it didn't last very long. He quickly learned how to use those teeth to take bites though... so now he uses them as they were meant to be used!

We are still a mess when it comes to sleep. We had three days in a row last week where Colby slept for 11 hours at night... so we know its possible. But it was short lived. He's been waking up very hungry between 3 and 4 am and nursing for about an hour before going back to sleep.

Since we cut all of the gluten from Colby's diet, he seems to be eating better. It seems like he eats.. and eats.. and eats.. and eats some more. Bananas and grapes seem to be a favorite, but he'll pretty much eat anything we give him. Colby has also mastered using spoons and forks already. Most of the time, he won't eat unless he has a utensil of some sort, and he uses them better than Kyle and Emily do! He can even eat a bowl of cereal all by himself!

As far as food, we are avoiding dairy, oats, peanuts, tree nuts, citrus, tomatoes, carrots, and gluten. I don't think the list has changed in the past month other than adding gluten due to the celiac's diagnosis. As far as his environmental allergies, it seems like the new medication and changing around the other ones is helping. He's been able to play outside longer without getting short of breath or covered in hives!

Schedule wise, things are pretty much the same. Breakfast at 8ish, lunch around noon, dinner around 5:30. He has been doing better with his nap! Normally he goes down around 1:00 and sleeps until 3:30ish. Bed time is around 7:00 most nights. He's kind of hit or miss with what time he wakes up in the morning. If he eats in the middle of the night, he normally sleeps until Kyle and Emily wake up at 8am. If he sleeps all night, he normally wakes up around 7am to nurse and is up for the day.

Most days, Colby is nursing three times a day. Sometime in the morning... either in the middle of the night, or when he wakes up.. after lunch/before nap time... and before bedtime. Every once in a while, he'll get a little bit extra.

Colby loves to walking, climb, run... If he doesn't half to be carried, he would rather not be. He's even gotten decent at climbing up stairs by himself! Going down stairs is a different story... He will climb on anything and everything he can. If I leave the room for a moment, I normally find him on top of something (like the kitchen table) when I come back. He's a crazy little monkey and wants to keep up with his big brother and sister!

Colby loves technology. If the iPad is out, he wants to use it. He's finally gotten to the point where he does more than just open and close apps... and take pictures! He has started to do some of the puzzle apps on the iPad and seems to enjoy the apps with animals that make noise. He also enjoys playing with mommy and daddy's phones.. or anyone else's that he can get a hold of!

Colby loves to play outside. He gets very excited when we put shoes on. Sometimes he doesn't realize we are leaving and thinks we are just going outside to play... and gets very mad when we put him in his car seat! As much as he loves to be outside, he's not to sure about walking in the grass. And if he falls over, he doesn't like to touch the grass to stand back up... Which probably is a good thing since he's allergic to the grass... He loves playing with the soccer ball with Emily. He also loves to go to the playground and go down slides!

When playing inside, Colby loves to read books. He picks out a book and finds a lap to sit on and wants to be read too! He also seems to enjoy reading books to himself. He also loves to play with blocks and build things.

Colby also loves to hang out in Kyle and Emily's beds. He climbs right up and cuddles in with their blankets. Sometimes they like this... sometimes they do not!

Colby is wearing mostly 12 month clothes. His pants are finally seeming to fit him well, but most of his long sleeve shirts still need to have the sleeves rolled up. He does have a few pair of 18 month jammies that he is wearing... and a new random 9 month shirts that still fit him as well.

Colby's sandals are  size five and his tennis shoes are size 4.

Colby loves to give kisses to Mommy, Daddy, Kyle, and Emily. Sometimes he will to other people as well. Most of the time he we can't give him to give kisses, he'll at least blow kisses. He also likes to give high fives and wave to people.

Colby has started to be helpful when it comes to picking up. He sometimes will pick up toys. Most of the time, we can get him to put his shoes and coat away when we get home. He's also pretty good at taking care of his dirty clothes!

Colby loves the chair in his room... he likes to sit and play in his chair. He also likes it when Mommy is in his chair because most of the time, that means he gets to nurse. But if any one else is in the chair, he normally isn't happy!

Colby says a few words... "mommy," "dada," "yeah," "boob," "bye," "vroom," "love you," "that," "up"... He also growls like a lion, barks like a dog, and quacks like a duck.

And.. most importantly... he's a little stud! :)

Friday, April 18, 2014

Colby's Follow up with the Allergist

This kid has had more doctor's appointments in the past couple months... he likes to "help" take his blood pressure, temp, and listen to his heart. It's cute... but it's sad that a one year old knows what all that stuff is for.

We updated the doctor on all that's happened with Colby's health in the past three months... and shared the new allergens we have figured out.

We talked about hives and eczema and rashes and asthma...

They want Colby to start taking zyrtec every morning. They also told us to give him his singular in the morning instead of at night time. This will hopefully help with his environmental allergies and help him breath easier with all the "junk" in the wonderful spring air. He said if this doesn't work, we can talk about allergy shots. He also said, if the asthma becomes more of an issue, we'll start nebulizer treatments.

Colby is currently taking hydroxozine twice a day (it's an antihistamine). We can use this up to four a day, so he said if he's seeming to have a reaction, then to give him more. If he's swelling and has hives, we can do Benadryl or his epi pen if needed also.

They suggested to keep up with our food journal to continue to help pin point other allergens that are causing reactions.

Last visit, we had talked about retesting and doing food challenges in the office. But at this point, we aren't going to do any more testing until he's at least two. Until then, we will continue with meds and avoid known allergens. We'll go back in three months to check in and see how he's doing unless we have more issues before then.....

Thursday, April 17, 2014

Colby's Biopsy Results

The GI's office called today with the results of Colby's biopsies...

He tested positive for the EOE...

He also tested positive for Celiac's disease...

Because his intestines had no visual indications of celiac's and looked healthy when the doctor was checking them out during the endoscopy, he is having all of the biopsies sent to UofM for a second opinion.

So... Colby unofficial has celiac's disease...

We go back for a follow up on May 19th. By then, they will have to results back from UofM, so we should get an official diagnosis.

Until then... Colby and I are to be gluten free...

And... dairy, oats, peanuts, tree nuts, tomatoes, and citrus free...

Thursday, April 10, 2014

Colby's Endoscopy

Colby had his endoscopy today. It was kind of a long morning... he wasn't allowed any solids after mid night and had to stop nursing at 9:30.

He screamed most of the 45 minute drive to the hospital, but then was okay once we got there. He played iPad with Grandpa while we waited. We kind of got excited when they told us one of the people before us was a no show, meaning we should get to go back early.... but he ended up having his procedure right at time... at 3:30.

While we were in holding, Colby fell asleep from some of the oral meds. When it was time, I carried him into the OR and held him while they got him hooked up to the heart monitors and such. He woke up a little when I laid him down on the table, but when right back to sleep. He woke up once the gas mask was put on his face and was not happy about that. But after screaming for 30 seconds or so, he was out. I gave him a kiss and walked out.

About a half hour later, Colby's doctor came into the waiting room to talk to us. He said that everything looked great. There were no signs of ulcers or inflammation anywhere in his GI tract! This means most likely no celiac's disease! In about a week, we should have back all of the results from the biopsies and allergy panels to know for sure about the celiac's disease and should have some answers about the EOE.

The doctor told us that I should be paged to go back to recovery in about 10 minutes... a half hour later, I still hadn't heard anything and started to get nervous. It was about 45 minutes after we talked to the doctor, that I finally got to go back to recovery. Apparently, they gave Colby a large dose of benadryl to help prevent any possible allergic reactions to the anesthesia and and that's why it took him so long to wake up.

Once we were able, he nursed... and nursed... and nursed. Then ate some crackers and drank some apple juice. Then he was discharged and on our way!

He's been a little silly, but mostly just wanted to eat and sleep since we've been home. Hopefully he'll be a good sleeper tonight and be back to normal tomorrow!