Friday, March 28, 2014

14 Months Old

This little stud is fourteen months old! Hopefully being fourteen months old will be a little easier on the kiddo than thirteen months was! 

Colby is picking up all of the "sass" from his brother and sister. He definitely is a spunky little guy and wants things done his way. He has mastered throwing a fit and tends to throw them often if he doesn't get his way!

Colby still only has two teeth, but the top center two should be making their appearance very soon. I've been able to kind of feel them for a couple days and today one is finally starting to be visible!

Colby LOVES to climb. He will climb on anything and everything he is able. He can easily get into Kyle and Emily's beds now. He can also climb on to the couch without any help. He climbs onto Mommy and Daddy's bed by pushing a chair next to it and climbing on to the chair and then the bed. I have also found him sitting on the kitchen table when I've left the room for a moment.

After being sick so for long, we were struggling to get Colby to eat normal. I finally feel like he's eating well again. He seems to enjoy most stuff that we give to him. At the moment his favorites seem to be potatoes, rice crispies (with coconut milk), and beans.

We are still trying to figure out some things allergies wise. Currently his "no-no list" is dairy, oats, peanuts, tree nuts, tomatoes, citrus, and carrots. For a while, peas were on the list too, but we tried those again last week and he didn't have a reaction! The doctors were thinking there was a dye of some sort that he was allergic too, but based on what he's been okay to eat, I'm back to thinking it was the zofran that he reacted to in the ER a month ago. I'm also thinking that there is some sort of preservative (possible MSG) that he's reacting too. Gluten is also an issue, but until we do his endoscopy, he is still eating gluten (read about that here if you haven't yet). And I'm also avoiding everything on his list as I'm continuing to breastfeed him!

Kyle and Emily got doctor kits for their birthday and they seem to be Colby's new favorite toy. He loves to play with the stethoscope and "listen" to everyone's heart. It's WAY cute!

Colby is starting to talk a little more. He has said "mama," "daddy," and "yeah" for a while. In the past month his vocab has grown to include "boob," "bye," "quack" (while playing with ducks), "vroom" (while playing with cars), "love you," and a few other words that I can't think of right now.

Colby loves to wave "hi" and "bye" to people. He also loves to give people high fives. In the past couple days he has also started blowing kisses.

Colby can follow directions now. Sometimes he chooses not to, but he understands when we ask him to do things. He is starting to help put away toys and his dirty clothes when asked.

Colby loves to play with phones and iPads. He will sit and play with the unlock screen on my phone for a while. If he happens to get my phone and it's unlocked, there is a really good chance that he will call Grandma.

Colby loves to watch out the window. We moved our living room around again and now he can easily look out the sliding door. He loves to watch people and the cars. I'm really hoping his environmental allergies don't keep us inside when it starts getting nice out, as I think he is really going to enjoy being outside and playing.

 Colby is still wearing 12 month clothes. I have a feeling he will be for a couple more months.

Colby knows which shoes are his shoes. When we start to get ready to leave and I tell the kiddos to get their shoes, he joins right in with Kyle and Emily pulling his shoes out of the bin. He tries to put them on, but hasn't really figured that one out yet. He will also bring other people their shoes and try to put them on their feet too!

As miserable as the kiddo has been the past month with all his GI and respiratory issues, he has been one happy kid! Other than throwing fits when he doesn't get his way, Colby is pretty laid back like his daddy. He's very happy and smiley most of the time, even when he doesn't feel good!

Schedule wise, things are pretty much the same. Colby normally wakes up between 4:30 and 5:30 am to nurse and then goes back to sleep until about 8:00 am. Breakfast is first thing, then lots of playing or adventures until lunch time around noon. After lunch, Colby nurses and then goes down for his nap. Most days he sleeps until 3:00 pm or so. Then it's more playing until dinner around 5:30 pm. After dinner, we pick up toys, take baths, read the Bible, and put the crazies in bed around 7:00 pm. Colby then nurses and goes to bed. Most nights, he is in bed sleeping by 8:00 pm. 

Tuesday, March 25, 2014

Colby's GI Appointment

We finally got a call yesterday from the GI doctor and they asked if we could come in today. For as long as it took for them to call, I'm glad we were able to get Colby seen quickly!

We talked and talked and talked about the past eight months or so of Colby's life (since he started eating more than just breastmilk). We talked about food, appetite, poop, more poop, hospitalizations, weight gain/loss, allergies, hives, epi pens, poop some more, and puke.

Colby weighed in at 19.5 pounds. So he is up a little bit, but still a couple pounds below where he was a month or so ago when he got sick.

Colby still isn't have "normal" bowel movements, and the stool softener he was sent home from the hospital on just gives him diarrhea, so the doctor is putting in on a different stool softener that should work a little bit better.

The doctor said it sounds like on top of the known allergies, there are still some that are unknown. He also thinks that along with his allergies, that Colby may have several intolerances as well when it comes to food.

He's pretty sure there is something going on that is gluten related, even though his allergy skin testing didn't show an allergy to wheat. He is thinking that Colby is either having an Eosinopholic Esophagitis (EoE for short) reaction to gluten or that he has Celiac Disease. The blood work really was inconclusive about the Celiac, but because we did have some positive results, we do know there is some sort of reaction to the gluten going on.

EoE is an allergic reaction where the esophagus gets inflamed.

Celiac disease is when gluten causes damage to the intestines.

He explained that even though the allergy testing came back negative for gluten, that sometimes with the EoE the skin testing comes back negative.

The only way to get a for sure diagnosis or to rule out either of these is to do biopsies. So, we have an endoscopy schedule for April 10th. They will take a look around and do biopsies of his esophagus, his stomach, and his intestines. It will take a few days for his results to come back, but should hopefully get some answers.

Because gluten tends to make Colby throw up and have an upset belly, we are supposed to limit his (and my) gluten intake until a week before his endoscopy. Then we are both supposed to have a high gluten diet for the week leading up to his endoscopy. The rough part about this testing is that the patient has to have lots of gluten in their system to get accurate test results.

Colby's liver enzymes have been a little elevated the past few times blood work has been done, so he wanted to do more labs to check that out. He said it's most likely from all the viruses that have been going through the poor kid's system, but it's better to check it out just to be safe.

And, just as every other doctor has, I was encouraged to keep on breastfeeding! I love that so many doctors are supportive and encouraging when it comes to extended breastfeeding!

So, please keep praying for the little guy. We still don't have answers, but appear to be on the right track to getting answers. At this point, any "news" is good news. There is something wrong, and the sooner we know what is wrong, the sooner we can do something to make him feel better!

Friday, March 14, 2014

Three Year Old Well Visits

Yesterday Kyle and Emily had their three year old well visits. They were both excited that it was their turn to see the doctor (because Colby has had lots of visits)! They even told me that it would be okay if they had to get shots because then they could get band aids!

Emily weighed in at 24.4 lbs and measured at 33.5 inches tall. Both are less than the 3rd percentile. Doctor said she is healthy and growing like expect; she's just a little peanut. (To which she replied, "I not peanut. Polby peanut!")

Kyle weighted in at 27.2 lbs and measured at 35.75 inches call. Less than the 3rd percentile for weight and about the 10th percentile for height. The doctor also said that's he's healthy and growing on his own curve.

We talked about some poop issues for Emily. The doctor said to make sure she's staying hydrated and has lots of fiber in her diet.

We talked about Kyle's hives. He's reacted once to both shrimp and peanut butter, but has also eaten both without a reaction. Because of Colby's crazy allergies, the doctor wants to run blood tests on Kyle to test for allergies just to be safe.

Other than that, both kiddos are doing great!

Odd fact... All three of our kids have a double uvula. Less than 2% of people in the world have a double uvula... so it's really odd that all three of our kids do! :)

Update on Colby

Colby was doing lots better.
By Thursday, he was pooping again... and again.. and again... and hasn't really stopped. But, he was eating normal again, and keeping everything down.

Monday night, he started to run a fever. And since has been running a fever on and off. And he's been full of snot. And more snot. And more snot! We were thinking it was just teeth coming in, but now we aren't so sure.

Tuesday, Colby got a hold of Kyle's milk. I'm pretty sure he didn't take an actual drink, but got the little bit that was on the top of the cup. About a half an hour later, the poor kids eyes and lips were swollen. Luckily, a dose of benadryl was all that he needed.

Yesterday, he started gagging on snot and started throwing up again.

And today, he's pretty wheezy.

Poor little buy can't catch a break!

We also got Colby's blood work back yesterday. Half of the test indicate Celiac Disease and the other half were negative. So, we still really don't have any answers. A referral has been submitted to see the GI specialist, so hopefully we will get an appointment soon!

Wednesday, March 12, 2014

Kyle's Yearly Cardiology Check Up

Yesterday, Kyle went to the cardiologist for his yearly echo and check up.

He did very well laying still for his echo. He watched Finding Nemo and only had a few moments of squirminess! I was very happy that he didn't need to be sedated!

The doctor checked out his echo and listened to his heart. He said that everything looked great! Kyle's VSD is still 3 mm and hasn't changed one bit. This is good news!

Monday, March 10, 2014

Daddy Pictures

Birthday Adventure Number Two

Birthday adventure number two was bowling. Our friends Paul, Stephanie, Issak, and Andrew joined us as well! 

Kyle and Emily both seemed to have lots of fun, although, I think Emily enjoyed bowling a little bit more than Kyle. Both of them asked if we could go again soon!

Birthday Adventure Number One!

We decided we needed to do two birthday adventures for Kyle and Emily!

Birthday adventure number one was to Fredrick Meijer Gardens to see the butterflies. They both loved it!